We promise to

  • keep patients at our core. Every decision we make is taken with the needs of people who live with EB at the forefront of our minds. We work with our Patient Ambassadors and our Board members to help to keep it that way.
  • always think big. Our belief in aiming high helps us to achieve big things in patient care, research and advocacy.
  • join forces with groups and individuals, in Ireland and internationally, to achieve common goals. We believe in the power of connection.
  • work hard to keep our costs low and our impact high. We strive for ever-increasing efficiency and productivity.

Mission Statement

DEBRA Ireland is dedicated to driving and supporting research into effective treatments for EB and, in the meantime, to doing everything possible to alleviate the difficulties experienced by people living with EB.