Emma Fogarty, Patient Ambassador

I’m Emma Fogarty and I live in Co Laois with my parents and younger sister and I have Recessive Dystrophic EB.  From the minute I was born I had to fight for everything I have today.


Read more

Liz Collins, Family Patient Ambassador

My name is Liz and I am the Family Patient Ambassador for DEBRA Ireland.  My daughter, Claudia, was born with EB.


Read more