We are governed by a voluntary Board of Directors and as such we always ensure a strong portion of our Board is made up of EB family members.

  • Brian Harrison (Chairperson)
  • Mark Hyland (Secretary)
  • Val Fynes (Family)
  • Sorcha Griffith (Family)
  • Rosemary Keogh (Family)
  • Brian O’Neill (Family)
  • Dr Leonora Bishop
  • Jennie Power

Brian Harrison (Chairperson)

brian-harrison-e1431608087968Brian is the Managing Director of Hitech Health, a service provider within the life sciences sector.

Previous to being elected onto the Board of DEBRA in 2014, he was acting Director of Funding Programmes for the Science Foundation Ireland.

Mark Hyland (Secretary)

Mark-HylandMark is the Financial Director at eXpd8, an IT company who specialise in providing IT solutions to SME professional sector.

Mark and Ger are the parents of Alison and Erica, both born with EB.

Val Fynes

Val-FynesVal is a Bank Official with Allied Irish Banks. Val and his wife Maria are two of the founding members of DEBRA Ireland.

Their son Aaron was born with EB and sadly passed away in 2001.

Rosemary Keogh

Rosemary is CEO at the Irish Wheelchair Association.Rosemary-Keogh

From 2004-2010, Rosemary served on the Board of DEBRA Ireland as Director, Treasurer and Chair. During this time she led and implemented a significant organisational change programme.

Rosemary’s son, Evan, was born with EB.

Dr Brian O’Neill

Brian-ONeillBrian is the Director of Lifesciences with Enterprise Ireland and has been on our board for a number of years.

His nephew, Robert O’Neill, was born with EB and served as a patient ambassador for DEBRA Ireland.

Sorcha-Griffith-PassportSorcha Griffith

Sorcha is a social worker working in homeless services. She is a patient representative on the board. A former journalist and researcher, Sorcha believes passionately in social justice and the empowerment of the individual, and brings her wide professional and personal experience to DEBRA Ireland.

Dr Leonora Bishop

Leo-BishopLeo acts as a strategic advisor and consultant to a number of life sciences companies. Previously, she was Head of Strategic Investments and R&D Innovation policy in IDA Ireland.

She has a wealth of experience in health research and has been volunteering her time with Debra Ireland for the past number of years.

Jennie Power

Jennie-PowerJennie is Head of Compliance & MLRO, Barclays Bank Ireland.