50 Miles in February Challenge

DEBRA Ireland was set up in 1988 by families living with the painful, genetic skin condition epidermolysis bullosa (EB) who had no support and nowhere to turn.  We will continue to work as a family and patient-led organisation to do all we can for people in Ireland living with EB.

Latest News

Krystal Biotech Announces Positive Results from Phase 3 Clinical Trials of their gene therapy, VYJUVEK

Krystal Biotech has developed a gene therapy, called VYJUVEK, which is designed for use in patients with Dystrophic EB (DEB)… Read More →
Family Support ServiceFamily Support Service

Family Support Service

We travel across Ireland to ensure no family with EB is left alone.

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What is EB?What is EB?

What is EB?

EB (epidermolysis bullosa) is a rare painful genetic skin condition.

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